POTs Syndrome Causes, Triggers, & Diagnosis | Heart2Heart Ireland
POTS is an abnormal increase in heart rate that occurs after sitting or standing up. It is most
common in women aged between 15 years and 50 years.

 

Normaly when you stand up your cardiovascular system responds to the change of position
and the effort. This is the function of the autonomic nervous system in your body. In POTs
this is not working properly. As a result when you stand up you have inadequate blood flow
so your heart rate increases significantly to compensate. This causes the following
symptoms

  • Dizziness or lightheadedness
  • Fainting
  • A brain fog
  • Palpitations
  • Fatigue
  • Weakness
  • Perspiration
  • Headaches
  • Nausea
  • Shortness of breath

 

POTs Syndrome Diagnosis:

There are a number of tests completed that will explore different reasons for your
POTs symptoms

  • A tilt table test
  • Active stand test
  • Blood tests to test your liver, kidney and thyroid function
  • Electrocardiogram
  • Echocardiogram
  • 24-hour blood pressure and heart rate monitor

 

POTS Syndrome Treatment:

The European Society of Cardiology in 2019 issued the following guidelines for the
treatment of POTS:

  • A regular progressive exercise programme should be considered (Level of evidence
    B)
  • The consumption of ≥2-3 L of water and 10-12g of sodium chloride daily may be
    considered (Level of evidence C)
  • Midorine, low- dose on non-selective betablocker, or pyridostigime may be
    considered (Level of evidence B)
  • Ivabridine may be considered (Level of evidence C)

At Heart 2 Heart we have travelled on the POTS journey with a number of our clients and
here are our key findings

  • It can take quite a while for a diagnosis to be reached with those diagnosed
    experiencing significantly deteriorating capabilities over time
  • When reading about POTS many believe that the symptoms are minor but in severe
    cases, sufferers are bed bound for long periods with significant symptom onset on
    any position change and an extremely heavy fatigue burden
  • The journey to recovery is long and commitment to a rehabilitation programme is
    necessary with periods of recovery followed by relapses, on average a 2-3 relapse
    incidence over an 18 month period of rehabilitation.
  • If there is not a rigorous commitment to the prescribed exercise the effects of
    exercise training are limited. At Heart 2 Heart 2 offer weekly sessions but our clients
    are expected to complete 2 additional sessions themselves in their home initially and
    then in a gym or outdoor activity as they improve.
  • Unfortunately there is not quick fix and a continuum of exercise is required for the
    rest of their lives.
  • Significant lifestyle changes have to be addressed with POTS whether it means
    improved working hours, a good balance overall to maintain equilibrium.

 

Heart2Heart & POTS Treatment

Heart2Heart have developed a dedicated programme for patients in Ireland who have developed POTs Syndrome, Fill out the contact form on this page to get in touch with us and take the first step to getting treated.

 

 

Meeting Karen and attending her weekly classes changed everything for me, she gave me my life back. When I started her cardiac rehab programme I had little hope of ever returning to work or even going out for a walk. With her expertise, patience and holistic approach, I can now do everything I used to be able to do, something which I could have only dreamed about.

Aisling (Living with POTS)

Contact us with any questions.

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